Tag Archives: C diff Support

C Diff Foundation Members Volunteer Over 20k Hours Of Service To Raise Awareness and Educate Worldwide

The C Diff Foundation celebrated ‘National Volunteer Week,’  April 23 – 29 to recognize more than 150 volunteer members around the globe ~ dedicated in raising awareness of C.diff. infection prevention, treatments, environmental safety and support with the C Diff Foundation

 

 

 

and have collectively donated more than 20,000 hours of volunteer service to the Foundation over the past nine months.

Thank you!

We are truly grateful!

Food For Thought, An Overview Of a Low FODMAP Diet and the Importance Of a Registered Dietitian

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The FODMAP Diet is being discussed at greater lengths with patients experiencing gastrointestinal (GI)  challenges and alterations with their GI systems.

 

There is not a specific “C. diff. Diet,” as Clostridium difficile is an infection, however; we know and understand that the G.I. system is quite effected by this infection causing a disruption in normal dietary intake and difficulties maintaining adequate hydration and nutrition on a daily basis.

This brings us to the Low FODMAP Diet. What is it? What does FODMAP stand for? Can it benefit patients diagnosed with C.diff. ? All good questions and this is yet one more topic patients can discuss with their healthcare providers providing their care and with a Registered Dietician with a solid background in Gastroenterology and utilizing the FODMAP diet plan with patients.

FODMAP is an acronym for:
Fermentable (produces gas in the intestines)
Oligosaccharides (fructans and galactans/GOS)
Disaccharides (lactose)
Monosaccharides (excess fructose)
And
Polyols (sugar alcohols such as sorbitol, maltitol, mannitol, xylitol, and isomalt)

FODMAP’s are sugars – the carbohydrates – in foods eaten and are poorly absorbed by the GI system.  The intestinal bacteria in the gut can react negatively to these types of foods and cause abdominal bloating, accompanied by gas,  developing pain and even diarrhea and/or constipation.

When foods high in FODMAP are eliminated from the daily diet of patients diagnosed with Irritable Bowel Syndrome (IBS), patients begin to witness a decline in the negative GI (gastrointestinal) symptoms.  By reducing the intake of FODMAP foods may also help reduce GI symptoms for patients diagnosed with Crohn’s, Ulcerative Colitis (UC) or Inflammatory Bowel Disease (IBD).

  • Please Note:  Before changing diets, always speak to the healthcare professional/s monitoring and treating any/all gastrointestinal symptoms.

What foods contain FODMAP’s ?

Here is a partial listing of food high in FODMAP:

  • Fructans and Galactans/GOS:  Wheat, Rye, Barley, Onion, Garlic, Inulin/Chicory root, Most Legumes (bean sources), Artichoke, Soy Milk, Rice Milk, Coconut Milk.
  • Lactose:  Milk, Yogurt, Ice Cream, Soft Cheeses such as Ricotta and Cottage Cheese.
  • Fructose: A major ingredient in many processed foods is High Fructose Corn Syrup, Honey, Agave, and Fruits such as Applies, Pears, and Watermelon.
  • Polyols:  Mushrooms, Cauliflower, Sugar-Free Gum and Candy, and a few fruits such as Peaches, Plums, and Cherries.

Here is a partial listing of foods that are allowed when following a FODMAP Diet:

  • Grains:  Rice, Oats, Gluten-Free Pasta, Breads, and Cereals.
  • Fruites: Oranges, Bananas, Grapes, Honeydew Melon, Cantaloupe Melon, Kiwi, Pineapple and Berries except blackberries.
  • Vegetables:  Carrots, Eggplant, Zucchini, Peppers, Green Beans, Lettuce, Cucumber, Potato, and Tomatoes to name a few.
  • Protein:  Chicken, Turkey, Fish, Eggs, Beef, Pork, Tofu, Nut Butters.
  • Dairy: Lactose FREE Milk products, If there is not a nut allergy then proceed to Nut Milks such as Almond and Cashew Milk, Lactose Free Yogurt, Hard Cheese like Chedder and Feta.

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Registered Dietitians (RD) with expertise and familiar with this diet help patients live better with any gastrointestinal diagnosis successfully.

Please note: This diet is a two step diet and consists of the elimination process and then the reintroduction of foods back into the diet.

The support and guidance gained by patients working directly with a RD will find this diet less restricting and experience the alleviation of negative symptoms caused by many food items.

The role of a RD is to guide patients and their families to eating nutritious foods and to assist in creating healthy, enjoyable meals that will promote a healthy GI system and reduce the symptoms.

To learn more about Registered Dietitians please take a moment to click on the link below to view a short video and gain a better understanding of the important role a RD provides in promoting well being and improving patient care in the healthcare system.

https://cdifffoundation.org/2013/07/18/what-a-registered-dietitian-can-do-for-you/

Karen Factor, RD is the Chairperson of Nutrition and Wellness Committee
of the C Diff Foundation and is available through the  C.diff. Support Sessions offered each month.  Register for a FREE support session with Karen by clicking on the following link:

https://cdifffoundation.org/cdiffsupport/

 

 

Resources: Academy of Nutrition and Dietetics

Smile.Amazon.com Program Provides Support

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Show your support to  the C Diff Foundation– it is as easy as a mouse click  with Smile.Amazon.com

 

 

♥ Mother’s Day ♥    is May 8th and your support is as easy as shopping at smile.amazon.com in support of the C Diff Foundation.

 
AmazonSmile Mother’s Day Link: http://smile.amazon.com/gp/charity/homepage.html?orig=%2Fgp%2Fbrowse.html%3Fnode%3D502659011&ein=46-1272728

Find a wonderful gift for you and  your family members and provide support by participating in the AmazonSmile Program.

Join us in our dedicated fight against C. diff. and help us continue our mission of educating, and advocating for C. difficile infection prevention, treatments, and environmental safety and saving lives worldwide

Thank you for showing your support by participating in the AmazonSmile program.
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Make Mom Smile on Mother's Day

  Go to Org Central   C DIFF FOUNDATION

Through your support the C Diff Foundation will continue raising C. difficile infection
awareness, meeting the goals of our mission statement, and helping prevent this
life-threatening infection, and saving lives worldwide.

We thank you in advance for your support!

The Direct Impact On Mental Health Caused By Physical Illness and Personal Loss Discussed With Cheryl Jones

 

 Listen In On Tuesday, April 19th

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To access the live broadcast and Podcast Library
C. diff. Spores and More  Global Broadcasting Network
please click on the logo above *

C. diff. Spores and More,” Global Broadcasting Network – innovative and educational interactive healthcare talk radio program discusses

This week’s episode——

“The Direct Impact On Mental Health Caused By Physical Illness and Personal Losses”

 

With Our Guest, Cheryl Jones, M.S., M.F.T.,   A grief counselor,  a cancer educator and C. diff. survivor.

Tuesday, April 19th  at the following times

10 a.m. Pacific Time
11 a.m. Mountain Time 
12 p.m. Central Time  
1 p.m. Eastern Time

Join us with our guest,Cheryl Jones, M.S., M.F.T.,   as we discuss anxiety, depression, and grief.  Chronic physical illness, also defined as a medical condition that lasts for a year or more, has been experienced by many individuals diagnosed with a C. difficile infection. Patients can become depleted in patience and tolerance from an illness, resulting in a disruption of normal day to day activities due to limited mobility and/or loss of in dependency or from the loss of a loved one. The individual may experience feelings of frustration, anger and even grief. A sense of hopelessness may follow. Like other chronic medical conditions, individuals diagnosed with C. diff.,are also at risk for developing clinical depression and anxiety. Listen in as Cheryl provides information educating  those who are struggling through physical limitations and personal losses.

 Our Guest:  Cheryl Jones  is a grief counselor and a cancer educator who hosts Good Grief radio on the VoiceAmerica network. During her education as a Marriage and Family Therapist, her first wife was diagnosed with Multiple Myeloma, which was at the time a uniformly terminal illness with a six month to one-year prognosis. In the eight + years that followed, Cheryl engaged daily in the work of preparing for her death. They worked closely with Stephen and Ondrea Levine (Who Dies and Grieving Into Life and Death), learning to live with uncertainty. After her wife’s death in 1995, Cheryl immersed herself in her own multifaceted grief, surprised by frequent moments of joy.

Cheryl is a consultant and group leader at the Women’s Cancer Resource Center (Oakland, CA), where she developed, manages and teaches in their Cancer, Illness and End of Life Continuing Education program. She also presents workshops integrating the arts, most particularly music, into explorations of grief.

The C Diff Foundation Offers Patients, Family Members, and Clinicians Global Community Support

We are pleased to announce the

C. diff. Global Community Support Program —   an extension of  our

existing patient program – C. diff. Nationwide Community Support Program.

Our Foundation Members and Medical Advocates, leading the support groups, via: teleconferencing, will now have the ability to offer support to patients, families, clinicians, and individuals seeking support —  in  the U.S. and 57 countries.

Below you will find the list of countries, with their local cities,  able
to participate in our teleconferencing support groups:

Argentina – Buenos Aires and Cordoba
Australia – Adelaide, Brisbane, Melbourne, Perth, Sydney
Austria – Countrywide, Vienna
Bahrain – Countrywide
Belgium – Brussels
Brazil – Belo Horizonte, Curitiba, Rio de Janeiro, Sao Paulo
Bulgaria – Sofia
Canada – Calgary, Edmonton, Halifax, Hamilton, Montreal, Ottawa, Quebec City, Toronto,
Vancouver, Winnipeg.
Chile – Santiago
China – Beijing
Columbia – Bogota
Costa Rica – National VolP
Croatia – Zagreb
Cyprus – Nicosia
Czech Republic – Prague
Denmark – Countrywide
Dominican Republic – Santo Domingo
El Salvador – San Salvador
Finland – Helsinki
France – Marseille, Paris
Germany – Berlin, Frankfurt, Hamburg, Munich
Greece – Athens
Hong Kong – Countrywide
Hungary – Budapest
India – Bangalore, Delhi, Mumbai
Ireland – Dublin, National VolP
Israel – Jerusalem, Tel Aviv
Italy – Milan, Rome
Japan – Tokyo
Latvia- Riga
Lithuania – Vilnius
Luxembourg – Countrywide
Malaysia – Kuala Lumpur
Malta – Countrywide
Mexico – Guadalajara, Mexico City, Monterrey
Netherlands – Amsterdam
New Zealand – Auckland
Norway – Oslo
Panama – Panama City
Peru – Lima
Poland – Warsaw
Portugal – Countrywide
Puerto Rico – Aguadilla
Romania – Bucharest
Russia – Moscow
Singapore – Singapore
Slovakia – Bratislava
Slovenia – Ljubljana
South Africa – Cape Town, Johannesburg
South Korea – Seoul
Spain – Barcelona, Madrid
Sweden – Malmo, Stockholm
Switzerland – Bern, Geneva, Zurich
Turkey – Istanbul
Ukraine – National VolP
United Kingdom – Birmingham, Edinburgh, Leeds, Liverpool, London, Manchester, National.
Venezuela – Caracas

Registration will remain the same – through the main number (919) 201-1512
or utilizing the nationwide U.S. Hot-Line 1-844-FOR-CDIF, or from the Foundation website
http://www.cdifffoundation.org C. diff. Global Community Support page.

Support is only a phone call away worldwide

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Season’s Greetings From the C Diff Foundation

 

 

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There is no time more fitting to say thank you and Season’s Greetings from all of us at
The C Diff Foundation and to wish you a Happy Holiday Season.

 

 

Special wishes are being sent out  to the many patients and families who have witnessed or have been diagnosed with a C. difficile infection;  May you have a New Year of restored health, support, hope, and renewed happiness.

Warm wishes,
The C Diff Foundation Members

C Diff Foundation Board of Directors:

Nancy C Caralla, Scott Battles, Dr. Ahmed A. M. Al Mandalawi, MD,
Tiffani M. Eberflus, Rowaland R. Dory, Angelo Ortiz

Mental Health Advisory Committee
Lesa Bridges, LCSW, MSW, Chairperson

Research and Development Committee
Dr. Martha R. Clokie, MS, PhD
Dr. Simon Cutting, MS,PhD, Chairperson
Dr. David Cook, MS, PhD
Dr. Rahma Wehelie, PhD
Dr. Hudson Garrett, Jr., PhD, MSN, MPH, FNP, CSRN, VA-BC, CDONA,FACONA,DON-CLTC™, C-NAC™, PLNC

Medical Advisory Board:
Dr. Mark Wilcox, MD, Chairperson
Dr. Rosie Lyles, MD
Dr. Sadeq A. Quraishi, MD

C. diff. Nationwide Community Support Program:
Dr. Paul Feuerstadt, MD, Medical Advocate
Dr. Caterina Oneto, MD, Medical Advocate
Lisa Hurka-Covington – MD Support Leader
Scott Battles – MO Support Leader
Karen Factor, RD- FL Support Leader
Roy Poole, CO Support Leader

Pediatric Support, Research and Development Committee
Tiffani Eberflus, LPN, Chairperson

C Diff  Volunteer Advocate Program
Angelo Ortiz, Chairperson

Marketing and Graphic Arts Committee
Anthony DelMonaco, Marketing VP
Joel Davis, BS, Chairperson

Nutrition Wellness
Karen Factor, RD, MS, Chairperson

Biologic Research and Development Committee 
Michael Kaleko, MD, PhD, Senior Vice President, Reseaerch & Development Synthetic Biologics
Joseph Sliman, MD, MPH, Senior Vice President, Clinical & Regulatory Affairs, Synthetic Biolgics
Andy Bristol, PhD, Vice President, Research & Development, Synthetic Biologics

 

C. difficile Infection (CDI) C Diff Foundation Opens a New Avenue – C. diff. Nationwide Community Support Program

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The C Diff Foundation introduces the  C. diff. Nationwide Community Support (CDNCS) program beginning in November  for patients, families, survivors and for anyone seeking information and support.

C. difficile (C. diff.) infections caused almost half a million infections among patients in the United States in a single year, according to a 2015 study by the Centers for Disease Control and Prevention (CDC).

In addition, an estimated 15,000 deaths are directly attributable to C. difficile infections, making them a substantial cause of infectious disease death in the United States. [i].

As of 2015, there is an absence of professional C. diff. (CDI) support groups in America. The          C Diff Foundation has pioneered a collaborative plan and developed support groups in a variety of availability and locations to meet the needs of individuals seeking C. diff. information and support.

“We found it to be of the utmost importance to implement this new pathway for support and healing after speaking with numerous patients, family members, and fellow-C. diff. survivors,”

We now speak for the thousands of patients within the United States who, each year, are diagnosed with a C. diff. infection. This growth, in part, reflects the value C. diff. support groups will provide, not only to patients, their spouses, and families who are living with and recovering from a C. diff. infection, but also to the countless number of individuals who will become more aware of a C. diff. infection, the importance of early detection, appropriate treatments, and environmental safety protocols. There will also be Bereavement support group sessions for   C. diff. survivors mourning the loss of loved ones following their death from C. diff. infection involvement.

Beginning November 2015 the CDNCS groups will be available to all individuals via: Teleconferencing with some groups advancing and adding computer application programs in 2016. CDNCS groups will provide support and information  to 15 participants in each session.

The CDNCS program sessions will be hosted via: Teleconferencing with leaders hosting from Maryland, Florida, Missouri, Colorado, Ohio, and Oregon.

The Colorado CDNCS group is offered at a public venue and will be hosted in Arvada, Colo. every third Tuesday of each month, beginning November 17th. The Meeting will start at 5:30 p.m. and end at 7 p.m lead by a C Diff Foundation Volunteer Advocate and C. diff. survivor          Mr. Roy Poole.

To participate in any CDNCS group being offered during each month, all interested participants will be asked to register through the Nationwide Hot-Line (1-844-FOR-CDIF) or through the   website https://cdifffoundation.org/ where registered individuals will receive a reply e-mail containing support group access information.

  • The Support Registration Page  will be available on November 1st.

The C. diff. Nationwide Community Support group leaders will provide a menu of topics being shared each month on the C Diff Foundation’s website ranging from Financial Crisis Relief, Bereavement, Nutrition, Mental Health, to C. diff. infection updates and everyday life during and after being treated for a prolonged illness. Teleconference sessions will also host healthcare professional topic experts

There is evidence that people who attend support group meetings have a better understanding of the illness and their treatment choices. They also tend to experience less anxiety, develop a more positive outlook, and a better ability to cope and adapt to life during and after the treatment for C. diff.

There is a Purpose:

A diagnosis of a C. diff. infection is unexpected and almost always traumatic. As a result, it is not uncommon for newly diagnosed patients to experience a wide range of emotions including, confusion, bewilderment, anger, fear, panic, and denial. Many people find that just having an opportunity to talk with another person, who has experienced the same situation, to help alleviate some of the anxiety and distress they commonly experience.

Individuals also find that they benefit not only from the support they receive, but also from the sense of well-being they gain from helping others. It has been said “support is not something you do for others but rather something you do with others.”

“None of us can do this alone – all of us can do this together.”

 

Follow the C Diff Foundation on Twitter @cdiffFoundation #cdiff2015 and                                        Facebook https://www.facebook.com/CdiffFoundationRadio.

Note/citation: [i] http://www.cdc.gov/drugresistance/biggest_threats.html