Category Archives: November C;diff Awareness

Thanksgiving 2020

 

 

 

 

A Bit of History……..
Thanksgiving Day, annual national holiday in the United States and Canada celebrating the harvest and other blessings of the past year. Americans generally believe that their Thanksgiving is modeled on a 1621 harvest feast shared by the English colonists (Pilgrims) of Plymouth and the Wampanoag people.

The Thanksgiving holiday holds special memories and meanings to everyone.  This year the landscape of gatherings, and the social event has changed.  We continue following guidelines to maintain our health, ward off acquiring the virus, keeping our children, families, and loved ones safe, as we continue maneuvering our way through these turbulent times caused by the Global COVID-19  virus  pandemic.  

On February 11, 2020, the World Health Organization announced an official name for the disease that is causing the 2019 novel coronavirus outbreak. The new name of this disease is coronavirus disease 2019, abbreviated as COVID-19. In COVID-19, ‘CO’ stands for ‘corona,’ ‘VI’ for ‘virus,’ and ‘D’ for disease. Formerly, this disease was referred to as “2019 novel coronavirus” or “2019-nCoV.”  SARS-CoV-2 virus is a beta coronavirus, like MERS-CoV and SARS-CoV. Coronaviruses, named for the crown-like spikes on their surfaces, are a large family of viruses that are common in people and many different species of animals, including camels, cattle, cats, and bats. (1)

Our members reach out to you, your families, your friends, and associates with heart-felt greetings as we social-distance, visit through ZOOM, Facebook Messenger, and every app. available allowing us to virtually spend time with others.   The way we connect  for education, for business, for doctor visits, and in our families has changed.  This Thanksgiving holiday gathering, along with special occasions earlier this year and the ones that are on the horizon, have a different landscape, a different feel to them, a different content.  The one thing that has NOT changed?  The love that we express through emails, through live online events, for the apps. we are utilizing to see others that mean so much to us.  So today, let’s give thanks for the technology that has been created and that is available to us to connect virtually right now, while the scientists and medical science professionals continue working at developing a vaccine that will keep us safe, that will bring us all back together.  It is what we do today that will make a significant difference tomorrow.

We share the gratitude for family members, for friends, and for the care teams, for the treatments and clinical trials available today to help resolve and prevent a C. diff.  infection, recurrent C. diff. infections, along with the many wellness-draining diagnosis that our bodies endure at one time or another.  Thank you, and a shout-out to the Infection Preventionists across the globe joining us during the annual campaign,   “November is Raising C. diff. Awareness Month.” Thank you to the many State Governors proclaiming November Is Raising Clostridioides difficile Awareness Month.  We are profoundly grateful!

Every day the gratitude pours out to the healthcare professionals devoting their lives to medical science, the research and development teams, the individuals and colleagues who give it their all in order to turn the infections around to improve our health safely, and effectively with  products being developed.  Through clinical trials, and  the organizations enrolling individuals today,  C. diff. infection studies for initial infections, recurrent C. diff. infections, and for the prevention of a C. diff. infection — you help them – to help you – to help others.    You are NOT out of options!

As the Thanksgiving holiday arrives this year we send our best wishes, with an abundance of gratitude, to you, your family, friends, and to the health care professionals visiting the website, participating in the online events this year, for joining us at the 8th Annual International C. diff. Virtual Conference and Health EXPO, and for reaching out to us by telephone, emails, and for being part of the C Diff Foundation programs worldwide.  We are here to help you through this infection, to continue recovering from this infection, to help others learn more about C. diff. infection prevention, treatments, clinical trials, diagnostics, environmental safety, and support around the globe.   “Thank You.”

“None of us can do this alone ~ all of us can do this together.”

Sending warm Thanksgiving wishes,

C Diff Foundation Members Worldwide

 

 

 

 

 

(1) CDC https://www.cdc.gov/coronavirus/2019-ncov/cdcresponse/about-COVID-19.html

November Is C. diff. Awareness Month: We Can Make a Difference Together Worldwide

In joint efforts with the C Diff Foundation Advocates and organizations dedicated in preventing and treating life-threatening Clostridioides difficile (C. diff., C. difficile) infections,  we express our gratitude and congratulate the State of Arizona, Arkansas, Idaho, Michigan, Minnesota, New Mexico,  Pennsylvania, West Virginia,  Wisconsin, to name a few, to date  for declaring November “Clostridioides difficile (C. diff., C. difficile) Awareness Month.

The Proclamations approved serve to heighten awareness of the impact this disease has on patients across the United States. The infection, which has been labeled an urgent national health threat by the Centers for Disease Control (CDC), results in 500,000 infections each year and is directly responsible for approximately 29,000 patients who died within 30 days of the initial diagnosis of C. difficile.  Of those, about 15,000 deaths were estimated to be directly attributable to C. difficile infections.

 

 

 

 

 

An excerpt from USA Today article published in 2012:    Deaths and illnesses are much higher than reports have shown. In March, the  CDC  said in a report that the C difficile infection kills 14,000 people a year. But that estimate is based on death certificates, which often don’t list the infection when patients die from complications, such as kidney failure.  Hospital billing data collected by the federal Agency for Healthcare Research and Quality shows that more than 9% of C. diff-related hospitalizations end in death — nearly five times the rate for other hospital stays. That adds up to more than 30,000 fatalities among the 347,000 C. diff hospitalizations in 2010. Thousands of patients are treated in nursing homes, clinics and doctors’ offices.

“We’re talking in the range of close to 500,000 total cases a year,” says Cliff McDonald, a C. diff expert, and senior science adviser in the CDC’s Division of Healthcare Quality Promotion. And annual fatalities “may well be … as high as 30,000.”

* AHRQ News and Numbers provides statistical highlights on the use and cost of health services and health insurance in the United States.

http://archive.ahrq.gov/news/newsroom/news-and-numbers/012512.html

In the USA:  Nearly half a million Americans suffer from Clostridium difficile (C. diff.) infections in a single year according to a study released February 25, 2015, by the Centers for

Not only in November, but every day of the year it is our time to make a difference!  Most patients and their families, until their diagnosis, are not familiar with this infectious disease.  When they tell their friends and family, their friends and family have never heard of a C. difficile (Clostridium difficile, C. diff., CDI)  infection before.

Sometimes, even when they are told by their doctors of this diagnosis, the doctors can be largely unfamiliar with the impact of this infection and the treatments readily available. This is astonishing. Why? Because a C. diff. infection impacts individuals differently than it did decades ago.  The re-occurrence rate is greater today than it was in previous years.   C.difficile infections are not only acquired by a hospital stay but can be community-acquired.  It is a global diagnosis and this infection is not isolated in the senior population, however; seniors remain in the higher risk category of acquiring this infection.

FACT:  About a C. diff. infection  — Over 41 individuals lose their life to a Clostridioides difficile infection in the United States of America alone each day — C. difficile has no boundaries — It can be acquired by anyone –  at any location and at any age.

Every year we work together to change the level of C. difficile awareness worldwide. Every year we make a difference. Every day of every year we share information through education and advocacy for patients and continue to raise awareness of Clostridioides difficile infection (C. diff., C. difficile, CDI) prevention, treatments, clinical trials, and environmental safety  — further than the day before.

“None of us can do this alone – All of us can do this together.”

Clostridioides difficile (C. diff. C. difficile, CDI) has had an immeasurable impact on our families, in our communities, in our countries.  It is a leading Healthcare-associated infection (HAI) yet awareness of Clostridioides difficile remains quite low among the general public worldwide.

Help us change this.  Contact us and join us TODAY!

Take Action

  • Draft a letter to your State Governor requesting a Proclamation for November dedicated for promoting Clostridium difficile Infection Awareness.
  • Create Your Own Fundraiser!
  • Contact kathy@cdifffoundation.org to get started on the fundraiser of your choice.

Awareness Tools

  • Share the C Diff Foundation brochure  (request your copies by e-mail)  A great guide to explain details about a C. diff. infection and data on C. diff. prevention, treatments, and environmental safety available.
  • The Clinical Trials Page showcases Clostridium difficile prevention and treatment clinical trials available and research-driven results.
  • Personal Stories on C. diff. Survivors Alliance  allow you to share your story, to help raise awareness about C. difficile infections, and to help raise funds for C Diff Foundation www.cdifffoundation.org
  • Share  C.diff. Global Community Support session information which is FREE and available across the USA and accessible from 57 countries to learn more about a C. diff. infection, Nutrition, and to speak with health care providers and fellow-C.diff. survivors to gain knowledge and have questions answered.

Social Media Involvement

Please join us and share YOUR story. Use these November Awareness campaign hashtags to spread awareness for November Is Clostridioides difficile (Clostridium difficile, C.diff., C.difficile, CDI) Infection Awareness Month.

To obtain printed literature to share with your family, friends, colleagues, in your community and with your health care providers  — along with  a “November Is C. diff. Awareness Month”  Magnet, please contact the C Diff Foundation’s Main Office (727) 205-3922 or email your request:  info@cdifffoundation.org

#CdiffInfectionAwareness

(Facebook)  (Twitter)

#CdiffNovemberAwareness

(Facebook)  (Twitter)

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NOVEMBER IS ALSO U.S. Antibiotics Awareness Week

November 18 – 24, 2019

 

 

 

CDC’s educational effort, Be Antibiotics Aware: Smart Use, Best Care, is the year-round effort to improve antibiotic prescribing and use and combat antibiotic resistance.

In November the  annual campaign  developed by the Centers for Disease Control and Prevention (CDC) :

Share the resources of countries Raising Antibiotic Awareness Worldwide

https://www.cdc.gov/antibiotic-use/week/get-involved.html

Antibiotic Awareness Week

https://www.england.nhs.uk/2019/10/world-antibiotic-awareness-week-18-22-november/

 

How do Antibiotics cause C. diff.?  The antibiotics cause a disruption in the normal intestinal flora which leads to an overgrowth of C. difficile bacteria in the colon. Leading antibiotics are known to disrupt the normal intestinal flora.

As far back as November 2012, the CDC started sharing a public announcement regarding antibiotic use: Colds and many ear and sinus infections are caused by viruses, not bacteria. Taking antibiotics to treat a “virus” can make those drugs less effective when you and your family really need them. Limiting the usage of antibiotics will also help limit new cases of CDI.
*Always discuss the symptoms and medications with the treating Physician/Healthcare Provider.

 

Your participation makes a BIG difference around the globe.

November IS C.diff. (Clostridium difficile, C.difficile) Infection Awareness Month – Changing Lives – Saving Lives – Making a Difference With You

YOU CAN make a difference!

How?

Let us show you the ways……

It is as simple as sharing a graphic provided below or by sharing the website which is complete with C.diff. Infection key points on  Prevention, Treatments available, Clinical Trials in progress, Environmental Safety, Infection Prevention, Support, Healthcare Provider updates, Patient and Family resources and much more.

www.cdifffoundation.org

The valuable information located on the website can answer questions that develop during a C.difficile infection.  The website also provides important contact information with  listings of free patient/family programs.

It is empowering to share the information through the printed literature available.  The information will be mailed  to a physical address (not e-mailed) and can be shared with friends, family, health care professionals, and within your community.

Having a conversation —- sharing your story, accompanied with the facts found on the website explaining C.diff. prevention, treatments available, clinical trials, environmental safety, and support worldwide, is both appreciated and powerful.

To receive complimentary brochures, magnets and additional information – please complete the form below:

You are invited to join us in advocating for Cdiff Awareness during the month of November and every month after that because educating and advocating  for C.diff. prevention, treatments available, clinical trials, environmental safety, and support is important every day of the year.

Become a Volunteer Patient Advocate today

Thank you for considering taking steps forward and walking with us to witness a global change and decrease in newly diagnosed Clostridium difficile infections worldwide.

With our sincere gratitude

The Committee Chairs, Patient Advocates, and Members of the C Diff Foundation Worldwide

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  • Please Note:  ALL personal information submitted will never be shared or sold by the C Diff Foundation.  Name, Address, e-mail address will be utilized for the purpose set forth in this message.
  • Thank you .

 

CutisPharma Partners With C Diff Foundation To Support C.difficile Infection Awareness and Advocacy Efforts

 

CutisPharma and the C Diff Foundation announced the launch of a partnership beginning on November 1, 2017, the first day of Clostridium difficile awareness month.  As part of the partnership, CutisPharma awarded an unrestricted grant to the Foundation to further support its awareness efforts.

“We are pleased to partner with the C Diff Foundation and support its education and advocacy efforts benefiting patients impacted by Clostridium difficile Infection,” said Neal I. Muni, MD, MSPH, Chief Executive Officer of CutisPharma.  “It’s our hope that our work together can make positive strides in building awareness of this life-threatening condition that affects over a half-million patients in the United States annually.”

The nonprofit C Diff Foundation is dedicated to supporting global public health initiatives for Clostridium difficile Infection (CDI), also called C. difficile or C. diff – for infection prevention, treatments and environmental safety.

“We are very thankful for CutisPharma’s support of our foundation’s efforts,” said Nancy Caralla, Foundress and Executive Director of the C Diff Foundation, who is both a nurse and a three-time C. difficile survivor who also lost her father to a C. difficile infection.  “CutisPharma’s mission to improve the lives of patients with unmet medical needs is aligned with our foundation’s goals, and we look forward to partnering with Neal and his team to further our education and advocacy efforts on behalf of patients and survivors.”

CutisPharma has undertaken several initiatives to expand from its traditional base of making compounding kits for pharmacists, including the development and commercialization of FDA-approved drugs. The filing of the Company’s first FDA New Drug Application earlier this year, by its RM Therapeutics subsidiary, was a key milestone in the Company’s expansion goals.

About CutisPharma

CutisPharma, Inc., based in Wilmington, Mass., is a privately held, specialty pharmaceutical company that has historically developed and distributed kits used by pharmacists to safely create compounded medications for nearly 20 years.  The Company’s products include oral solutions and suspensions, such as antimicrobials, mouthwashes, and PPIs; topicals, including hydrocortisone; and suppositories, including progesterone VGS.  CutisPharma’s FIRST Unit-of-Use Kits have benefited millions of patients who are unable to swallow conventional oral dosage forms such as tablets and capsules and whose needs are not served by commercially available therapies.  For more information, visit www.cutispharma.com.

C Diff Foundation Welcomes Denise Graham, Assistant Public Relations

We are pleased to welcome Denise Graham
to the C Diff Foundation.

Denise Graham, Founder and President of DDG Associates, formerly the Executive Vice President to the Association for Professionals in Infection Control (APIC) and Epidemiology, led the nation’s public reporting initiative thereby enabling her to work closely with all agencies falling under the U.S. Department of Health and Human Services.  Her expertise in this arena continues by assisting clients with ongoing changes such as value-based purchasing and guidelines coming from the Centers for Disease Control and Prevention (CDC).

With greater than twenty years of experience in the healthcare industry, Denise has formed key working relationships with numerous leading experts.

Denise comes to the C Diff Foundation as Assistant Public Relations Coordinator  to introduce the organization with greater visibility and continued growth in educating and advocating for C.difficile Infection prevention, treatments, environmental safety and support worldwide.

To contact Denise:, please e-mail her at:    denise@cdifffoundation.org