Category Archives: Support

Please — Do Not Take Medicine Into Your Own Hands, You Are NOT Out Of Options

Do-It-Yourself Treatments Could Be Fatal……

You are NOT out of options………………………

During these unprecedented times, we understand the patient’s frustration and how this pandemic has created a halt to the readily accessible alternative treatment option in the FMT community.   The need for continued treatments for a C. diff. infection and recurrent C. diff. infections are real and necessary. We also understand how patients experiencing
recurrent C. difficile infections are desperately seeking the FMT alternative treatment.

C Diff Foundation is able to provide information about treatments available to safely treat  CDI’s and recurrent C. diff. infections.

Most home remedies or natural therapies, though, haven’t been put through the same rigorous clinical testing you expect from pharmaceutical medications.

In a world where you can fix almost anything with a do-it-yourself video on YouTube, you might think curing your own illness would be a piece of cake. It might be if it weren’t for a couple of (not so small) sticking points.  One, the home remedy recommended by your friend — or one of the many websites promoting “natural therapies” — might not work.1  Dr. Harriet Hall, a retired family physician, former Air Force flight surgeon, and author of the SkepDoc column in Skeptic magazine, is one of those leading the charge against medical “treatments” not supported by science.  Like others in the medical and scientific community, ……. There is the only medicine that has been tested and proven to work, and medicine that hasn’t,” Hall told Healthline. 1

Talk to your medical professional/s.

Discuss medications and clinical trials available.

Do Not Share Antibiotics.

Responses to an anonymous online questionnaire of 496 parents, researchers at the Cohen Children’s Medical Center of New York reported that 48 percent of the parents surveyed said they’ve held onto leftover antibiotics. More troubling to researchers was that of those parents, 73 percent reported giving those antibiotics to siblings, unrelated children, and unrelated adults.  This would sometimes occur months after the drugs were originally prescribed.
Dr. Ruth Milanaik, director of the neonatal neurodevelopment follow-up program at Cohen and senior author of the study, says the results show an “alarming” percentage of parents engaging in sharing or borrowing antibiotics, a practice known as prescription diversion.  “This is dangerous not only for those given antibiotics that weren’t prescribed for them but for entire populations of people who some antibiotics may no longer help when the bacteria they target become resistant to them,” Milanaik said in a statement. 2

Discuss Resources available.

Times are trying during these unprecedented times and you are not without hope – we would like to help you and not see you get hurt or even worse. Please take time to speak to your treating physician and consider contacting a C Diff Foundation Triage Nurse at 727-205-3922 to learn more about safe and effective treatments available and options available to you at this time of desperation.

Remember – You  Are Not Out of Options.

Stay safe – and please – Do NOT take medicine into your own hands.

Thank You!

Resources:
1 Foxnews.com
2 Healthline.com

 

 

Thanksgiving 2020

 

 

 

 

A Bit of History……..
Thanksgiving Day, annual national holiday in the United States and Canada celebrating the harvest and other blessings of the past year. Americans generally believe that their Thanksgiving is modeled on a 1621 harvest feast shared by the English colonists (Pilgrims) of Plymouth and the Wampanoag people.

The Thanksgiving holiday holds special memories and meanings to everyone.  This year the landscape of gatherings, and the social event has changed.  We continue following guidelines to maintain our health, ward off acquiring the virus, keeping our children, families, and loved ones safe, as we continue maneuvering our way through these turbulent times caused by the Global COVID-19  virus  pandemic.  

On February 11, 2020, the World Health Organization announced an official name for the disease that is causing the 2019 novel coronavirus outbreak. The new name of this disease is coronavirus disease 2019, abbreviated as COVID-19. In COVID-19, ‘CO’ stands for ‘corona,’ ‘VI’ for ‘virus,’ and ‘D’ for disease. Formerly, this disease was referred to as “2019 novel coronavirus” or “2019-nCoV.”  SARS-CoV-2 virus is a beta coronavirus, like MERS-CoV and SARS-CoV. Coronaviruses, named for the crown-like spikes on their surfaces, are a large family of viruses that are common in people and many different species of animals, including camels, cattle, cats, and bats. (1)

Our members reach out to you, your families, your friends, and associates with heart-felt greetings as we social-distance, visit through ZOOM, Facebook Messenger, and every app. available allowing us to virtually spend time with others.   The way we connect  for education, for business, for doctor visits, and in our families has changed.  This Thanksgiving holiday gathering, along with special occasions earlier this year and the ones that are on the horizon, have a different landscape, a different feel to them, a different content.  The one thing that has NOT changed?  The love that we express through emails, through live online events, for the apps. we are utilizing to see others that mean so much to us.  So today, let’s give thanks for the technology that has been created and that is available to us to connect virtually right now, while the scientists and medical science professionals continue working at developing a vaccine that will keep us safe, that will bring us all back together.  It is what we do today that will make a significant difference tomorrow.

We share the gratitude for family members, for friends, and for the care teams, for the treatments and clinical trials available today to help resolve and prevent a C. diff.  infection, recurrent C. diff. infections, along with the many wellness-draining diagnosis that our bodies endure at one time or another.  Thank you, and a shout-out to the Infection Preventionists across the globe joining us during the annual campaign,   “November is Raising C. diff. Awareness Month.” Thank you to the many State Governors proclaiming November Is Raising Clostridioides difficile Awareness Month.  We are profoundly grateful!

Every day the gratitude pours out to the healthcare professionals devoting their lives to medical science, the research and development teams, the individuals and colleagues who give it their all in order to turn the infections around to improve our health safely, and effectively with  products being developed.  Through clinical trials, and  the organizations enrolling individuals today,  C. diff. infection studies for initial infections, recurrent C. diff. infections, and for the prevention of a C. diff. infection — you help them – to help you – to help others.    You are NOT out of options!

As the Thanksgiving holiday arrives this year we send our best wishes, with an abundance of gratitude, to you, your family, friends, and to the health care professionals visiting the website, participating in the online events this year, for joining us at the 8th Annual International C. diff. Virtual Conference and Health EXPO, and for reaching out to us by telephone, emails, and for being part of the C Diff Foundation programs worldwide.  We are here to help you through this infection, to continue recovering from this infection, to help others learn more about C. diff. infection prevention, treatments, clinical trials, diagnostics, environmental safety, and support around the globe.   “Thank You.”

“None of us can do this alone ~ all of us can do this together.”

Sending warm Thanksgiving wishes,

C Diff Foundation Members Worldwide

 

 

 

 

 

(1) CDC https://www.cdc.gov/coronavirus/2019-ncov/cdcresponse/about-COVID-19.html

C diff and You app. Available From the Apple Store and Get It On Google

C diff and You

Available From Apple Store and
Get It On Google

Eliminate the hours spent searching for
C. diff. infection information, definitions, and more on the web. Patients, with family members, caregivers,  and friends, are overwhelmed, and absolutely exhausted.

 

 

No one diagnosed with a CDI, and feeling so poorly,  has the time or energy to sit in front of a computer searching, reading, and clicking through pages of information.

Stay connected, stay up-to-date with the C Diff Foundation.

“None of us can do this alone ~ All of us can do this together.”

Download C diff and You today to learn more about
C. diff. (Clostridioides difficile, C. difficile, CDI) infection prevention, treatments, clinical trials, support, environmental safety, and more.

The 4th Annual Global C. diff. Awareness 2K Walks Go Virtual on September 11 and 12

The 4th Annual Global C.diff. Awareness 2K Walks Will Now Be VIRTUAL!

                   Join Us On……………….

Friday, September 11th – UK

Dr. Clokie, UK Walk Event Coordinator, will be hosting the VIRTUAL Walk in Leicester on September 11th as the UK is also under strict guidelines to slow the spread of the COVID-19 virus. 

  • The Leicester VIRTUAL Walk Will Begin at 10:00 a.m. – 11:00 a.m. – UK

  • VIRTUAL Entertainment Will Begin at 10:00 a.m. UK For the Children!

Saturday, September 12th –  USA

  • The VIRTUAL Walks Will Begin at 9:00 a.m. through 12:00 p.m. EDT

  • VIRTUAL Entertainment Will Begin at 9:00 a.m. EDT For the Children!

All Registered Awareness Walkers Will Receive a T-Shirt, Giveaways, and More via: United States Postal Service To the Address Provided at the Time Of Registration.

To Learn More About the Global C. diff. Awareness Walk Event and How You Can Register, Please Click On the Green Button Below……………..

 

 

 

We are truly grateful for your efforts, support and participation
of the Annual Walk events and we look forward to virtually walking with you in September!

“None of us can do this alone ~ All of us can do this together!”
~ C Diff Foundation

C. difficile Infection (C. diff.); A Survivor’s Perspective with CDI Introduction by Teena Chopra, MD,MPH,FACP,FIDSA,FSHEA

Join us on Tuesday, May 26th at 1:00 p.m. EST

C. diff. Spores and More Live Broadcast

www.cdiffradio.com

With Doctor Teena Chopra, MD,MPH,FACP,FIDSA,FSHEA
Associate Professor of Medicine,Division of Infectious Diseases,
Corporate Medical Director,Infection Prevention,Epidemiology,and Antibiotic Stewardship ,DMC and WSU Director,Infection Prevention,Epidemiology and Antibiotic Stewardship,Vibra Hospital

Dr. Chopra will lead the discussion with an overview of a C. difficile infection followed by Alba Muhlfeld, and Renata Johnson, C. diff. Survivors both sharing their journey and providing
key-points to our global listeners.

Unable to listen to the live broadcast?

Access the C. diff. Spores and More Library
http://www.cdiffradio.com
and listen at your leisure.

 

 

C. diff. Spores and More is sponsored by