Category Archives: C diff Global Community Support Program

Pharmaceutical Patient Assistance Program Information

Have you ever seen a TV ad for a prescription that concluded with “If you can’t afford your prescription medicine, Astra-Zeneca (or Pfizer or AbbVie) may be able to help you” and wondered what that meant? If you have commercial health insurance, that might mean a discount card to lower your co-pay to something more affordable. For patients, without health insurance, it could mean a free or discounted prescription, if you know how to access the Patient Assistance Programs sponsored by many pharmaceutical companies.

Many pharmaceutical companies have created Patient Assistance Programs, or PAPs, to provide select brand-name prescriptions at no cost to those patients that meet their financial and insurance criteria. The programs rely on healthcare providers or their staff to submit patient health and financial information, sometimes as often as every 90 days, so patients can receive life-saving prescriptions at no cost to them. Each specific program has its own set of eligibility rules which the patient must meet to be considered for free medications. While a few PAP medications are sent directly to the patient’s home, most are sent to their healthcare provider.

“We have a number of patients that contact us directly from the hospital or have not seen a doctor for many years”, said Nancy Caralla, Executive Director, C Diff Foundation. “By the time they contact us, they tend to have multiple conditions, some advanced, requiring some of the newer and more advanced therapies. Fortunately, those therapies are the ones that are usually available through Patient Assistance Programs.”

Through the affordable pharmaceutical lists provided by Walmart Pharmacy and the GoodRx App. we have also been successful in assisting patients with generic medication information or assistance program availability.

“None of us can do this alone ~ All of us can do this together.”

 

The 4th Annual Global C. diff. Awareness 2K Walks Go Virtual on September 11 and 12

The 4th Annual Global C.diff. Awareness 2K Walks Will Now Be VIRTUAL!

                   Join Us On……………….

Friday, September 11th – UK

Dr. Clokie, UK Walk Event Coordinator, will be hosting the VIRTUAL Walk in Leicester on September 11th as the UK is also under strict guidelines to slow the spread of the COVID-19 virus. 

  • The Leicester VIRTUAL Walk Will Begin at 10:00 a.m. – 11:00 a.m. – UK

  • VIRTUAL Entertainment Will Begin at 10:00 a.m. UK For the Children!

Saturday, September 12th –  USA

  • The VIRTUAL Walks Will Begin at 9:00 a.m. through 12:00 p.m. EDT

  • VIRTUAL Entertainment Will Begin at 9:00 a.m. EDT For the Children!

All Registered Awareness Walkers Will Receive a T-Shirt, Giveaways, and More via: United States Postal Service To the Address Provided at the Time Of Registration.

To Learn More About the Global C. diff. Awareness Walk Event and How You Can Register, Please Click On the Green Button Below……………..

 

 

 

We are truly grateful for your efforts, support and participation
of the Annual Walk events and we look forward to virtually walking with you in September!

“None of us can do this alone ~ All of us can do this together!”
~ C Diff Foundation

The C Diff Foundation Offers Patients, Family Members, and Clinicians Global Community Support

We are pleased to announce the

C. diff. Global Community Support Program —   an extension of  our

existing patient program – C. diff. Nationwide Community Support Program.

Our Foundation Members and Medical Advocates, leading the support groups, via: teleconferencing, will now have the ability to offer support to patients, families, clinicians, and individuals seeking support —  in  the U.S. and 57 countries.

Below you will find the list of countries, with their local cities,  able
to participate in our teleconferencing support groups:

Argentina – Buenos Aires and Cordoba
Australia – Adelaide, Brisbane, Melbourne, Perth, Sydney
Austria – Countrywide, Vienna
Bahrain – Countrywide
Belgium – Brussels
Brazil – Belo Horizonte, Curitiba, Rio de Janeiro, Sao Paulo
Bulgaria – Sofia
Canada – Calgary, Edmonton, Halifax, Hamilton, Montreal, Ottawa, Quebec City, Toronto,
Vancouver, Winnipeg.
Chile – Santiago
China – Beijing
Columbia – Bogota
Costa Rica – National VolP
Croatia – Zagreb
Cyprus – Nicosia
Czech Republic – Prague
Denmark – Countrywide
Dominican Republic – Santo Domingo
El Salvador – San Salvador
Finland – Helsinki
France – Marseille, Paris
Germany – Berlin, Frankfurt, Hamburg, Munich
Greece – Athens
Hong Kong – Countrywide
Hungary – Budapest
India – Bangalore, Delhi, Mumbai
Ireland – Dublin, National VolP
Israel – Jerusalem, Tel Aviv
Italy – Milan, Rome
Japan – Tokyo
Latvia- Riga
Lithuania – Vilnius
Luxembourg – Countrywide
Malaysia – Kuala Lumpur
Malta – Countrywide
Mexico – Guadalajara, Mexico City, Monterrey
Netherlands – Amsterdam
New Zealand – Auckland
Norway – Oslo
Panama – Panama City
Peru – Lima
Poland – Warsaw
Portugal – Countrywide
Puerto Rico – Aguadilla
Romania – Bucharest
Russia – Moscow
Singapore – Singapore
Slovakia – Bratislava
Slovenia – Ljubljana
South Africa – Cape Town, Johannesburg
South Korea – Seoul
Spain – Barcelona, Madrid
Sweden – Malmo, Stockholm
Switzerland – Bern, Geneva, Zurich
Turkey – Istanbul
Ukraine – National VolP
United Kingdom – Birmingham, Edinburgh, Leeds, Liverpool, London, Manchester, National.
Venezuela – Caracas

Registration will remain the same – through the main number (919) 201-1512
or utilizing the nationwide U.S. Hot-Line 1-844-FOR-CDIF, or from the Foundation website
http://www.cdifffoundation.org C. diff. Global Community Support page.

Support is only a phone call away worldwide

Season’s Greetings From the C Diff Foundation

 

 


There is no time more fitting to say thank you and Season’s Greetings from all of us at
The C Diff Foundation and to wish you a Happy Holiday Season.

 

 

Special wishes are being sent out  to the many patients and families who have witnessed or have been diagnosed with a C. difficile infection;  May you have a New Year of restored health, support, hope, and renewed happiness.

Warm wishes,
The C Diff Foundation Members

C Diff Foundation Board of Directors:

Nancy C Caralla, Scott Battles, Dr. Ahmed A. M. Al Mandalawi, MD,
Tiffani M. Eberflus, Rowaland R. Dory, Angelo Ortiz

Mental Health Advisory Committee
Lesa Bridges, LCSW, MSW, Chairperson

Research and Development Committee
Dr. Martha R. Clokie, MS, PhD
Dr. Simon Cutting, MS,PhD, Chairperson
Dr. David Cook, MS, PhD
Dr. Rahma Wehelie, PhD
Dr. Hudson Garrett, Jr., PhD, MSN, MPH, FNP, CSRN, VA-BC, CDONA,FACONA,DON-CLTC, C-NAC, PLNC

Medical Advisory Board:
Dr. Mark Wilcox, MD, Chairperson
Dr. Rosie Lyles, MD
Dr. Sadeq A. Quraishi, MD

C. diff. Nationwide Community Support Program:
Dr. Paul Feuerstadt, MD, Medical Advocate
Dr. Caterina Oneto, MD, Medical Advocate
Lisa Hurka-Covington – MD Support Leader
Scott Battles – MO Support Leader
Karen Factor, RD- FL Support Leader
Roy Poole, CO Support Leader

Pediatric Support, Research and Development Committee
Tiffani Eberflus, LPN, Chairperson

C Diff  Volunteer Advocate Program
Angelo Ortiz, Chairperson

Marketing and Graphic Arts Committee
Anthony DelMonaco, Marketing VP
Joel Davis, BS, Chairperson

Nutrition Wellness
Karen Factor, RD, MS, Chairperson

Biologic Research and Development Committee 
Michael Kaleko, MD, PhD, Senior Vice President, Reseaerch & Development Synthetic Biologics
Joseph Sliman, MD, MPH, Senior Vice President, Clinical & Regulatory Affairs, Synthetic Biolgics
Andy Bristol, PhD, Vice President, Research & Development, Synthetic Biologics

 

C Diff Foundation Welcomes Dr. Caterina Oneto, MD

 

We are pleased to welcome Dr. Caterina Oneto, MD to the
C Diff Foundation. 

Dr. Oneto presides as a Medical Advocate for the  
C. diff. Nationwide Community Support Program teleconferencing sessions.

 

 

Dr. Caterina Oneto is a Clinical Assistant Professor within the NYU Division of Gastroenterology, Board Certified in Gastroenterology and Internal Medicine. 

Fluent in Spanish, she graduated with a degree in Medicine and Surgery from the
Universidad de Valparaiso in Chile. She completed her residency in
Internal Medicine at Cabrini Medical Center, where she served also as Chief Resident, and later completed her Fellowship in Gastroenterology at Montefiore Medical Center, Albert Einstein College of Medicine. 

With expertise in endoscopy, colonoscopy, capsule endoscopy, liver and pancreatic diseases, Dr. Oneto’s special interests include IBD (Crohn’s disease and Ulcerative Colitis), IBS (irritable bowel syndrome), microbiota modification, treatment of Clostridium Difficile and FMT (Fecal Microbiota Transplantation).