Tag Archives: Cdiff awareness

Warm Wishes For a Peaceful Holiday Season

Happy Holidays!

The holiday season is upon us;  A time to share warm holiday greetings while reflecting upon the many individuals combating a C. difficile infection with the extensive list of  wellness draining illnesses worldwide.

We call to mind our loved ones, patients, neighbors, friends, acquaintances and the many individuals who have passed away from a Clostridium difficile infection and/or C. difficile  infection involvement while fighting other diagnoses simultaneously.

The all-encompassing nature of chronic illness and its disruption of life and plans can elicit a wide range of emotions. These responses include: stress, grief, anger,fear,depression, and anxiety.  Be kind to yourself.  Take time for you during the holiday season.

It has been found beneficial to experiment with a variety of ways to manage stress and the many emotions that surface during the holidays season. When you find a technique that relieves the symptoms,  try to incorporate it into your daily or weekly routine. Some proven methods include exercising, walking, yoga, listening to music, deep breathing exercise, meditation, cooking, reading, writing in a journal, and spending quality time with family and friends. There is always the option of speaking with a healthcare provider to obtain a mental health professional referral for continued support.

We would like to take this opportunity to say that during the year it has been an honor to stand along-side of the many global patient focused organizations, healthcare professionals, and scientists researching and developing preventative measures, and treatments to combat C. diff. infections with the long list of  “superbugs.”

We are truly grateful.

We look forward to releasing new programs in 2019 for patients, families, healthcare professionals. and residents in every community while working towards a shared goal in witnessing a reduction of newly diagnosed  C. diff. infections with increasing awareness of Antibiotic-Resistance, Antimicrobial Stewardship Programs, Sepsis, and more.

“None of us can do this alone…..all of us can do this together.”

Thank you for your continued support from all of us at the C Diff Foundation.

We wish you and your family warm holiday greetings with hopes for a
stronger, healthier, and positive New Year.

A Time To Reflect and Give Thanks

 

 

 

 

Dear Members, Followers, and Visitors,

It’s hard to believe another  year has caught up with us and here we are preparing for the
Thanksgiving holiday and reflecting upon the days that have passed by in 2016.

During this year we have been expanding across  the nation and reaching far away lands
meeting great people like you who are devoted to “Raising C. diff. Awareness” with
the C Diff Foundation.  “Thank you for joining us.”

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We want to extend our gratitude to you and everyone for the very warm welcome this past
year.  In our travels, and communication we get to discover many organizations doing really good work. The ones that are successful have a unique mission and a clear understanding of how to carry out that mission.  Some organizations, however, rise above the rest and just seem to possess special ingredients not found in the others.

 

The C Diff Foundation is one of these exceptional organizations, and its special ingredients
are what makes us so proud to be a part. The first of these is our outreach programs. Offering patients and their families avenues to gain support and information is vital and greatly needed during a C. diff. infection and during the recovery time from a C. diff. infection.

The second special ingredient is the dedicated volunteering members and staff around the globe,  most of whom have been faithfully serving our Foundation since the formation in 2012.  “Thank you for all you do for the good of others.”

The third special ingredient is you and all the Volunteer Patient Advocates worldwide with the financial supporters who see to it that our mission continues spreading with promoting the “Raising C. diff. Awareness” program along with the many programs in place to make you and your communities stronger than ever in C. diff. infection prevention, treatment , support, information, and environmental safety products available.  We are truly grateful.

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As we work together today, and in the coming  year, seeking opportunities to bring hearts to a mend through the C. diff. Global Community Support Program, we hope to speak with you by telephone via: Teleconferencing sessions or in person at a local event.  We are in the process of scheduling support sessions  worldwide right now, so please let us know if you are interested in participating by contacting us by phone or through the website.

There are tele-conference sessions hosted monthly by
Dr. Caterina Oneto, MD and Dr. Paul Feuerstadt, MD to discuss the Who, What, Where of
C. diff. infections, and additional sessions offered throughout the month
to discuss financial support, pharmaceutical information, bereavement, anxiety and
depression, nutrition, and general information sessions to speak with others who
truly understand the diagnosis and able to discuss how to work through it.

Register for a free support session by calling the
Nationwide Hot-line 1-844-FOR-CDIF or by accessing the registration page on the website

https://cdifffoundation.org/cdiff-global-community-support-program-%e2%99%a5/

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We also encourage you to introduce others to the C Diff Foundation Nationwide Hot-Line available: 1-844-FOR-CDIF for information and support.

 

 

“Support is only a phone call away”

 

As we come together with friends, family, and strangers–  let us reflect on our own thoughts and reflections of gratitude and let us light a candle to signify “hope” – the shining light that we see in the shadows when turmoil and struggles occur.

The days may becoming shorter during the winter months on the horizon but our light of “hope” for better health and stronger days has never shown brighter than today.

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Thank you for sharing the C Diff Foundation’s gifts with others worldwide.

“None of us can do this alone – All of us can do this together!”

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November 29th Is Giving Tuesday – A Global Day Of Giving and Your Support Grows and Strengthens the C Diff Foundation

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#GivingTuesday

Giving Tuesday Is a global day dedicated to giving back.

On Tuesday, November 29th , 2016  Charities, Families, Businesses, Community centers, and Students around the world will come together for one common purpose: to celebrate generosity and to give.

 

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#GivingTuesday was founded in 2012 by New York’s 92nd Street Y in partnership with the United Nations Foundation. Together, with a team of influential and founding partners together launched a global movement that has engaged over 10,000 organizations worldwide.

Remember the C Diff Foundation in your Giving Tuesday efforts. Your gift is tax deductible and it will support patients touched by the life-threatening C. diffiicle infection,  their families, communities and the many  programs dedicated in Raising C. diff. Awareness™   by providing information and support — from villages to cities — worldwide.

We appreciate you and all that you do for the good of others.

To Donate please visit  the C Diff Foundation Website   www.cdifffoundation.org

and choose the tab at the top of the page —

https://cdifffoundation.org/donate/

 

Thank you for your continued support and we are grateful for your generosity.

Medicine, Like All Science, Is Dynamic and Forever Evolving and Why It Is Regarded As “The Practice Of Medicine.”

Medicine, like all science, is dynamic and evolving—that’s why it is referred to as “the practice of medicine.”

Accepted treatments of one era might be discarded later as “pseudoscience.” What is considered “experimental” today might become the standard of treatment tomorrow.

Fortunately, there is something called peer review and scientific standards. Also, most health care providers have embraced the process of gathering as much evidence as possible instead of treating patients like lab rats.

There is no safe substitute for the intimate, one-on-one relationship between a patient and a physician. This will continue to be true as long as doctors remember that medicine is a science and an art, full of both expected outcomes and surprising solutions.

The phrase “Nine out of 10 doctors recommend…” is often used to promote widely accepted treatments, so that one outlier doctor must be responsible for all the rather wacky treatments that we other physicians get asked about every week. And although some of these treatments seem beyond bizarre, they can also be incredibly interesting.

At least they were to the three physicians listed in this article’s byline, including
Dr. H. Eric Bender, who says his fascination with peculiar medical practices started in medical school. During one of his early rotations, he was shocked to learn that not only could he order leeches for a patient in the hospital but he could specify where they were to be placed as well: left leg, right arm or whole body. (In case you’re wondering, to precisely “aim” a leech, place it in a small cup with a very small hole cut in the bottom. That hole is then aligned with the area on the patient requiring blood removal and voilà! Bloodthirsty segmented worms are suddenly hard at work.
(Dr. Bender does not recommend trying this at home.)

Now, thanks to our internet-sparked society of do-it-yourselfers, Bender’s fascination with the unconventional cure has continued to grow as he has contemplated conversations with his patients and researched a wide range of (seemingly) ridiculous but sometimes effective remedies.
“Unfortunately, the physician’s oath to “do no harm” has been replaced in many
clinics with “do clean up this mess.”

For example, a physician or two in the not so distant past recommended that children smoke tobacco to treat pica, a condition in which people feel compelled to chew on non-nutritious substances like rocks, sand or glass. Some doctors over the years suggested that patients use cocaine and heroin to remedy toothaches and persistent cough, respectively. (In addition to references, the book includes pictures as evidence.) Alcohol has been recommended to pregnant women for its health benefits—Guinness beer is rich in iron—and not just by Irish physicians. Others practicing medicine have suggested using hookworms to cure asthma (causing dangerous infections).

The list of dangerous substances, organisms and animal byproducts that people have used over the years to treat everything from low libido to sexually transmitted diseases goes on and on. Fortunately, most of the practices did not, as further research demonstrated the dangers of many of them.

“Weird medicine” is not limited to just medical practices and treatments. A look into the medical literature reveals that it is replete with research and studies that aren’t particularly well-designed or are far-fetched to the point of absurdity.

Some fascinating practices seemed like terrible ideas but are actually so well-supported by research that they are considered the gold standard for treatment of certain illnesses.

As an example, consider that antibiotics frequently kill good bacteria while also killing the bad bacteria doctors are trying to eliminate.

“Good” bacteria suppress the growth of bad bacteria. So when the good bacteria are wiped out, many individuals develop a type of intestinal infection known as Clostridium difficile
(or C. diff
). C. diff is often difficult to treat with antibiotics, since they typically caused the problem in the first place. Fortunately, one treatment has a  high rate of s
uccess: fecal transplantation. Yes, you read that correctly. Doctors place stool from a donor inside the patient’s gastrointestinal system. Intuitively, you might think putting my feces into your gut would cause serious infections, but the donated good bacteria help eradicate infection.

To learn more about FMT:  https://cdifffoundation.org/2016/03/02/fecal-transplants-fmt-treating-clostridium-difficile-infections-u-s-food-and-drug-administration-fda-seeks-comment-on-what-investigational-new-drug-ind-requirements-to-waive/

IHow about maggots instead? Maggot therapy involves using those little legless larvae to prevent a wound infection. Maggots selectively target and eat dead tissue that is difficult to remove surgically without taking healthy tissue with it. Although doctors have been aware of this fact since at least the 1930s, this treatment was not regularly used for decades, particularly as antibiotic use to treat and manage wounds rose in popularity. However, after a recent “rediscovery” of maggot therapy, more than 800 health care institutions use it today. You can be sure pharmaceutical companies are already working on a way to charge exorbitant prices for the little larvae.

Patients performing their own research online can spark informative conversations with their doctors, even if they do sometimes suggest things that make a person want to scream, or puke.

Nevertheless, although “Dr. Google” is punctual and doesn’t require a co-pay, it is still not qualified to diagnose and treat.

There is no safe substitute for the intimate, one-on-one relationship between a patient and a physician. This will continue to be true as long as doctors remember that medicine is a science and an art, full of both expected outcomes and surprising solutions.

So to our patients: Be wary of charlatans but keep an open mind. Bring all your questions to a physician and ask away. To our fellow physicians: Listen to your patients. Talk with them, not to them. And remember: If you can’t do any good, at least do no harm.

 

H. Eric Bender, Murdoc Khaleghi and Bobby Singh are the authors of 1 Out of 10 Doctors Recommends: Drinking Urine, Eating Worms, and Other Weird Cures, Cases, and Research from the Annals of Medicine.

 

To read this article in its entirety, click on the link below:

http://www.newsweek.com/2016/08/26/weird-medicine-doctor-google-pseudoscience-491240.html

C. difficile Infection (CDI) Prevention, Treatment, Environmental Safety, Research, Clinical Trials Being Discussed with World Topic Experts On September 20th In Atlanta, Georgia USA

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September 20th

It is with great pride and certainty in the power of the healthcare community to present the 4th Annual International Raising. C. diff. Awareness Conference and Health Expo

being hosted at the

DoubleTree by Hilton — Atlanta Airport 
3400 Norman Berry Drive
Atlanta,Georgia 30344 USA  (Hotel Phone: 1-404-763-1600)

Doors open at 7:15 a.m — Sign In and Continental Breakfast

Conference begins at: 7:30 a.m. – 5:00 p.m.

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Raising C. difficile awareness is essential to build upon and advance existing knowledge and necessary for overcoming the challenges our healthcare communities are faced with today.

“None of us can do this alone — All of us can do this together”

Nearly half a million Americans suffered from Clostridium difficile (C. diff.) infections in a single year according to a study released February 25, 2015 by the Centers for Disease Control and Prevention (CDC).   C. diff. is a leading cause of infectious disease death worldwide; 29,000 died within 30 days of the initial diagnosis in the USA.   Previous studies indicate that C. diff. has become the most common microbial cause of healthcare-associated infections found in U.S. hospitals driving up costs to $4.8 billion each year in excess health care costs in acute care facilities alone.

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Cdiff2015-1Clinical professionals gather for one day to present up-to-date data to expand on the existing knowledge and raise awareness of the urgency focused on a Clostridium difficile infection (CDI) —

    • Prevention
    • Treatments
    • Research
    • Environmental Safety
    • Clinical trials and studies

WITH

  • Microbiome research, studies
  • Infection Prevention
  • Fecal Microbiota Restoration and Transplants for Adults & Pediatrics
  • A Panel Of C. diff. Infection Survivors
  • Antibiotic Stewardship
  • Healthcare EXPO
    ……………………and much more.

You won’t want to miss out on this opportunity to learn from
International topic experts delivering data directed at evidence-based
prevention, treatments, and environmental safety in the C. diff.
and healthcare community.

Gain insights on September 20th that will not be available anywhere else with an opportunity to receive up-to-date data on major topics in this program being presented in one day.

5 Leading reasons to attend this dynamic conference:

  • Learn from leading healthcare professionals, clinicians, researchers, and industry.
  • Networking opportunities with new and reconnect with those in the healthcare community with similar interests.
  • Gain breakthrough results through research in progress and gaining positive results. Programs focused on Antibiotic-resistance such as the  Antibiotic Stewardship making a difference. Front line developments in progress focused on C. diff. infection prevention, treatments, environmental safety.
  • Implement and share the knowledge well after the conference ends.  Every attendee receives a booklet with guest speakers information, media to review audio programs, and Health Expo Sponsor information focused on the important agenda topics.
  • Embrace the opportunity, with all of the topic experts presenting, and hold the conference in the highest priority from the participation in this conference to an audience of medical students, and fellow healthcare professionals, who will benefit the most from the data and gain tools to overcome the barriers facing healthcare each day.

“The information and up-to-date studies shared at the 2015 conference added to an existing knowledge base that helps us to continue delivering quality care in the medical community.”   Linda Davis, RN,BSN

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REGISTRATION FEES:

$75.00  —  Conference Registration

$30.00  —  Student Conference Registration (Student ID To Be Presented At the Door)

TO REGISTER Click on the “Raising C. diff. Awareness” Ribbon below

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Room accommodations are available —  Complete and Confirm 

by August 19th to reserve your hotel reservations.   

To create a reservation please click on the DoubleTree By Hilton Logo below – – – – – –

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 A suggested travel coordinator, for your convenience

LibertyTraveldownloadMichael Beckman — Team Leader,  Liberty Travel, 467 Washington Street, Boston, MA  02111
617-936-2435
Michael.Beckman@flightcenter.com

 For Additional Information visit the C Diff Foundation Website:

https://cdifffoundation.org/

https://cdifffoundation.org/

And Click on the 2016 September Conference Tab

 

Follow us on Twitter
@cdiffFoundation
#Cdiff2016

C Diff Foundation’s Volunteer Patient Advocates Promote Their Summer of 2016 Schedule Of Events “Raising C. diff. Awareness™”

VOLUNTEER PT ADVOCATES

C Diff Foundation’s Volunteer Patient Advocates; Heather Clark and Kimberly Reilly

will be “Raising C. diff. Awareness ™”  at the following events over the Summer of 2016.

 ~ Save the dates ~ 

Lycoming County Fair
1 E. Park St, Hughesville, PA 17737
Saturday, July 16 and Saturday, July 23, 2016
10 am to 10 pm

Hart-Parr Oliver Collectors Association National Summer Show
(This is the national tractor show where their Father’s tractor will be on display)
3349 Gehan Road, Canandaigua, NY 14424
Friday, August 12, 2016
* See us in the flea market section of the event; there will be acres of flea market displays
Hours not set, but we will be there all day

Wyoming County Fair
Route 6, Meshoppen, PA 18629
Saturday, September 3, 2016
10 am to 10 pm

 

Stop by their booths to learn more about C. difficile infection prevention, treatments, support, and environmental safety worldwide.

For additional information please
contact the C Diff Foundation office:  1-919-201-1512

C.diff Spores and More Discuss Current C.difficile Infection Objectives For Hospitals Within the United Kingdom With James McIlroy, Founder of EuroBiotix CIC

 

Listen To The JUNE 7, 2016 Podcast

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To access the live broadcast and Podcast Library
C. diff. Spores and More  Global Broadcasting Network
please click on the logo above *

C. diff. Spores and More,” Global Broadcasting Network – innovative and educational interactive healthcare talk radio program discusses

This Episode:      “EuroBiotix CIC – Supporting Clinicians Within the UK Deliver Fecal Microbiota Transplantation (FMT) To Patients With Recurrent C.difficile Infection”

With Our Guest:              James Mcllory

Listen to the PodCast available from the JUNE 7TH  C.diff Spores and More episode as we discussed current C.difficile infection objectives for hospitals within the United Kingdom with James McIlroy, a medical student and founder of a not-for-profit stool bank based within the University of Aberdeen in Scotland

MORE ABOUT OUR GUEST:

James McIlroy is a senior medical student at the University of Aberdeen in Scotland. Previously, he earned his Bachelors in Medical Sciences with Honors in human Physiology at the University of Edinburgh. At the present time, James is undertaking a prestigious fellowship at the Royal Society of Edinburgh. During his time at medical school, James identified an unmet need for safe access to fecal microbiota transplantation (FMT) within the United Kingdom. He subsequently established a not-for-profit community interest company called EuroBiotix CIC, which seeks to support clinicians within the UK National Health Service provide FMT.

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C. diff. Spores and More ™“ Global Broadcasting Network spotlights world renowned topic experts, research scientists, healthcare professionals, organization representatives,C. diff. survivors, board members, and C Diff Foundation volunteers who are all creating positive changes in the C. diff. community worldwide.

Through their interviews, the C Diff Foundation mission will connect, educate, and empower many worldwide.

Questions received through the show page portal will be reviewed and addressed  by the show’s Medical Correspondent, Dr. Fred Zar, MD, FACP,  Dr. Fred Zar is a Professor of Clinical Medicine, Vice HeZarPhotoWebsiteTop (2)ad for Education in the Department of Medicine, and Program Director of the Internal Medicine Residency at the University of Illinois at Chicago.  Over the last two decades he has been a pioneer in the study of the treatment of
Clostridium difficile disease and the need to stratify patients by disease severity.

To access the C. diff. Spores and More program page and library, please click on the following link:    www.voiceamerica.com/show/2441/c-diff-spores-and-more

Take our show on the go…………..download a mobile app today

http://www.voiceamerica.com/company/mobileapps

Programming for C. diff. Spores and More ™  is made possible through our official  Sponsor;  Clorox Healthcare

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